~ Life as it is ~

April has barely started and it seems like nothing is going right for me.  Between personal issues and school, I am officially burnt-out, exhausted, and stressed.  But "this too shall pass" and everything will eventually go back to normal, it always does.  I guess I will briefly go over what's going on in my everyday life, progress with Mimi, and the lovely "attitude" Kai has developed over the past few months.  

I guess it will be best to start off with the kiddos:

Mimi

Took Mimi to UNC Healthcare Friday, April 8, 2011, to see her Geneticist.  It actually went pretty good.  Her Geneticist is very impressed with Mimi's progress.  She was actually surprised at how much Mimi has progressed with walking, communicating, socializing with unfamiliar individuals, etc.  Of course in her eyes, Mimi will most likely never be "normal", but that's perfectly fine too.  It's just another adjustment to my daily life.  Then, she thought it was nice to mention the fact that Mimi's head is the size of a three month old.  Which is true, but I guess something's I prefer "not" to hear.  But since she last saw her about 18 months ago, her head circumference has grown, so that's a plus.  Her head (brain) size will never be the normal size, but at least it's growing.  She went on into details about some other stuff, but honestly, I think it went in one ear and out the other, because it was a little confusing.

Yesterday (Monday, April 11, 2011), went to Mimi's last transition meeting from IEP to Pre-K and she will be going to the CDC.  I am happy about that.  I did not want her going to Howe and the other school was way off of Military Cutoff and personally, that's just out of my way.  So starting in August, Mimi will be going to school for the first time.  I am so happy for my "Mimi Monster".  They provide transportation to our home, so that will help out a lot.  

There are a lot of goals they have set for Mimi, but figured we'd go ahead and work on them before she starts school in August.  Mimi has trouble walking steadily.  She tends to walk/run at the same time.  So, that's one main issue to work on.  Also, when she goes down a slide, she tends to fall back.  So, I'm in the process of either finding a slide or "cheap" playground with a slide attached to it, to have at my mom's, since I am trying to convince her to keep them some throughout the summer, so I can focus on my research.  Fingers crossed.  She still can't seem to feed herself very good.  Well, she can, but it's more as if she picks over her food with her fingers, versus using a fork/spoon.  Another goal is for me to let her pick out what she wants to drink, instead of just giving it to her.  This will possibly help with her communication.  As of right now when she wants something to drink, she falls out in front of the fridge, until I either giver her something to drink or make her sign thirsty.

Her signing is going ok.  We haven't really worked on it much, but will hopefully get back into very soon.  Especially with my semester being almost over.  But she's doing very good with the ones she know.  So all is well with little Miss Mimi.

Kai

Where to start with the oldest child.  He has become a pain in the neck lately.  His attitude has gotten worse and I don't know why.  He seems to do good at school, so hopefully when he starts school in August too, (not sure where) things will get better.  He'll be in school everyday, instead of just twice a day for a few hours.  

Kai did have an appointment in Raleigh, NC a few weeks ago to have his thyroid levels checked and they were a little off, so his dosage was increased from 44MCG to 50MCG.  His levels will be rechecked locally in 4 weeks.  Hopefully, the increase will calm him down.  

Kai tries to help a lot, but I think his definition of "helping" is not the definition I have.  Instead of helping, he tends to get in the way.  His new thing is, "I'm mad at you mommy", "I don't love you mommy", "I want to go to my daddy's", or "You just don't understand."  There's a lot more sayings, but honestly I don't remember them all.  

He's recently learned how to skate, which he seems to love.  I got him his own pair a few weeks ago, but he wants roller blades.  I told him if he learns how to skate in the regular skates, then in September for his birthday, we will upgrade.  So we will see how that goes.

Me

Life has been rough, but I have dealt with it the best I can.  Yay!!  I've never been good at making decisions or making the right choices.  I really suck at this, so I guess it's something I need to work on.  I say that now, but will it ever happen?  IDK.  Being that I've been dealing with a lot of personal problems, I've kept to myself lately and will probably be doing it for sometime.  It's just how I deal at times and it's one of those times.  But as each passing day goes by, I get better, but I seem to block more and more people out of my life.  But that's how my life goes and I'm ok with that, for the moment.

When times get tough, I find an escape route.  So, I think I'm getting a new piercing tonight.  :)